I’m Back!

April 23, 2010

Wow, it has been way too long since I’ve been out here to do an update. I apologize to those of you who have come to check in and have only seen the same old thing!

Once radiation was done they pretty much cut me loose. This can, and did, create a slight feeling of abandonment. Now I have to go see my oncologist every three months. At my last appointment they told me that the schedule would soon change to six months and then yearly.

I should be over joyed at the news but somehow it creates a feeling of unease. They have support groups for this issue and that also address “survivor guilt”. I have decided to check out one of the groups and will be attending next week.

Another thing that I’ve started is to attend an exercise class on Saturday mornings. Only women who are currently going through treatment or have been through treatment attend and it’s lead by the oncology nurse practitioner Joanna. We even have live music to exercise to – it’s awesome.

And if that and trying to get my son through 6th grade don’t keep me busy enough I’ve started a team for the American Cancer Society’s Relay for Life being held in Sunnyvale the weekend of June 26th.

If you’d like to join my team or support with a donation take a trip out to our team page at

http://main.acsevents.org/goto/iiwii2009

Don’t forget you can also get one of the cool iiwii items by shopping at www.shop.iiwii2009.com where the proceeds go directly to breast cancer research at the Palo Alto Medical Foundation.

Meet the Starship Enterprise

January 12, 2010

Now I was off to my first treatment. I entered the medical center, walked into the radiation oncology portion, through the “general population” waiting area (I felt quite privileged to do so) and found my way to the back, which was quite comfy, with over-stuffed chairs and loveseats.

As I was sitting there, I began to ponder how they would they know who I was or when my appointment was supposed to be.  You see, I had not met any of the technicians yet, and there was no place to check-in. It was quite spooky as a very nice guy came out, looked directly at me and said “Miss Polen?”

I, of course, since it is my name, said “Yes.”

He said “Hi, I’m Kevin, come on back.”

We crossed through the control center and into the room with the Starship Enterprise.  Again, off with the clothes and onto the table.  Although the table is a flat hard metal, you lay on your mold, which creates the pillow, and then they put a triangle of foam rubber under your knees. (I want one of those by the way.)

The first treatment is the worst because the technicians that are actually giving you the treatment  have to figure out the set up.  There is a whole bunch of holding still, measuring within centimeters, holding your breath, test runs and more Sharpies.  To reposition you, the techs come in, tell you to relax, grab the side of the sheet underneath you, and move you, literally, centimeters. This entire process takes about 30 minutes.

FINALLY the treatment begins.  The techs leave the room and the sliding lead door (which is about 12 inches thick) shuts silently.  Then the bazillion pound machine looming over you moves into position.  You hear a voice over the speaker that says “Okay, here we go… deep breath… hold it.”  About 20 seconds later you hear, “Good job, take a breath and here we go.”  I did that 2 times on one side, then the machine moved, and I did it again from a different angle.

I know this sounds daunting, but after the first one, from the time that I was called in to the time I started up my car to leave, it was 13 minutes.  Piece of cake.

My treatment was Monday through Friday for 28 days and then I was done… with everything!  Just like that!


All the iiwii products are now viewable and available at http://www.shop.iiwii2009.com go take a look!


Breast Cancer Survivor for 16 Months, but Now I’m Scared… huh?

December 8, 2009

My next post was going to be about the actual radiation treatments. It’s quite benign as far as I’m concerned. I’ve actually been putting it off because I thought that it would the end of the story and wondered what I would write/blog about next. And really, in my mind, I didn’t want it to be over.

Sure there’s more… like taking the hormones to keep the estrogen away, and how they make your joints hurt, and how you gain weight (or don’t but either way, it’s tough to lose now). It’s all just part of the process to keep yourself alive and tick off the months to that 5 year goal.

Of course part of the follow up is your annual mammogram. I’ve been having these every year for 15 years. I had my first at 35 because of my mom’s breast cancer history. It’s never been a big deal. I’ve never had anything show up on the mammogram ever, including my breast cancer.

When I went in today I realized that I was scared. What if they found something on the right side? They had seen something suspicious on the right when I was diagnosed on the left, but it looked like it hadn’t changed from the prior mammogram. They still did the full ultrasound guided biopsy – hell, why not? I was there – on the right and that came out negative .

But today my mind said, “What if?” What if what they have seen for the past two years really is something?

What if I have to go through what I went through a year ago? What will I do? Will the results be as positive? As much as I loved being bald, can I do that again? What if I have to do chemo again? Can I? It’s easy the first time because it’s not as bad as you thought it would be, but now… I know what it is – not bad but definitely a pain in the ass.

I found myself wondering, “If they find something on the right will I just choose to have a full mastectomy on both sides and not have to face this again?” I don’t know, but my thoughts surprised me since I was never scared when I found the lump or got the diagnosis. I just kind of knew.

Today I don’t know what the results will bring. Although I did make the tech let me look at the pictures and they looked okay. I saw where they left the clip in the right breast when they biopsied last year and there doesn’t appear to be any change or new masses so I think that’s a good sign.

I must be honest that my mind is so very much saying “what if?” and I am going back to the baseline… It is what it is! If there is something, and I have to face it again then I will do so. It’s nothing I can change.

Wish me luck!


Don’t forget to take a look at my iiwii products at www.shop.iiwii2009.com – it’s all updated!

Radiation Simulation Not the Real Deal Yet

November 11, 2009

Simulation involves lying on a table, perfectly still for about an hour, in a very uncomfortable position while a voice over the speaker tells you you’re doing well.  Simulation also entails holding your breath for 20 – 40 seconds, over and over again.  Oh yea, there are a bunch of Sharpee markers involved as well.

The set up:

  • Enter the room, take off everything from the waist up, put on a gown that will be taken off (like who’s modest at this point?) and lie down on the table underneath a very large bazillion-pound machine.
  • The doctor, who you’ve met at a previous appointment, comes in to say howdy.
  • Then they put you “in the position” – what position that actually is depends on where they’re going to shoot the radiation.  Whether left or right breast, they need a clean shot at it so either your right or left arm will be above your head.  I’m not sure that, even when I was young, I would have been able to lay in this position for 45 minutes but it was sure as hell was tough to do at the age of 49.
  • Out come the Sharpees.  They mark you all up with Sharpees – they uses X, O, big sweeping circles, little dots… you name it, they use it!
  • They then page the doctor to come take a look at whatever it is that the technicians are looking at behind their wall of lead and glass.  The doctor apparently has to give his/her okay and then it’s on to the next step.
  • Now they have to make the mold.  This is a very high tech procedure.  If you’ve ever been to the doctor you know that all of the trash cans are lined with a blue trash can liner.  Well they take this liner and some duct tape fill the “trash bag” with expandable goo, duct tape it shut, then have you lay on it in the position they’ve determined to be the best for you.  Again, don’t move!
  • After about an hour of lying still, making the mold, being uncomfortable, you have your personalized mold made and now you get your tattoos.
  • The arm goes back up and you get to hold still yet again. A very nice person (the tattoo artist) comes in and does the “this won’t hurt a bit” speech and pulls out the ink and needle.  It is not like getting a real tattoo because it’s not an electric thing.  It’s more like getting, I would guess, a prison tattoo because it’s just a needle and ink and it’s done manually.  It seems to me that it is a pretty good size needle (blood draw gauge vs. tattoo gauge). Because it was only one poke for each tattoo… I had 4 and let me tell you it really hurts to have a needle stuck into your sternum (breastbone) – but it was only one stick.
  • Once you get the feeling back into your shoulder, neck and arm you’re cleared to get dressed.
  • Once dressed, they set up your first “real” appointment and then you leave with the absolutely wonderful and darling technicians wishing you well.  They also tell you that when you show up for your first treatment you don’t have to go to the “general population” waiting area; you go to the back to the waiting area and they do show you where that is located.

 

Next up… the real deal.

Radiation… I thought that was a bad thing…

October 27, 2009

So now we’re done with the chemo portion of the program and it’s on to radiation. How cool is this? They are done pumping me full of poison and think that it’s necessary now to shoot me full of radiation which I’m pretty sure isn’t something that’s recommended for the healthy body.

The treatment program for me was radiation once a day, Monday through Friday, for 28 treatments. Again, I don’t know who figured this out, but apparently 27 treatments are too few and 29 is overkill. What’s amazing about this is that the actual treatment only lasts about 60 seconds. Where in life, except maybe a marathon, does one minute make that big of a difference?

I would love to be able to tell you that this is a completely benign and painless process but alas I cannot. As with diagnosis and surgery it’s all the prep stuff that is a total pain in the ass. Alright, it’s not a pain in the ass it’s a pain in the shoulder.

Off I went to the radiation oncologist for my consult and simulation. The radiation oncologist was a nice guy, quite cute and a golfer to boot – sweet! We did the meet and greet, breast exam, check the suture sites etc. then off to the simulation.

Now I must admit I was thinking, what the hell is a simulation? What it is, by the way, is a misnomer, at least from the patient’s point of view. It simulated absolutely nothing except for my lying uncomfortably on a table. However, I guess it was quite informative for the radiation techs and radiation oncologist… far be it from me to argue.

Next up… the details of simulation…

 

Chemo, Weight Loss and Food

September 9, 2009

Okay, let’s get this out of the way right off the bat. Breast cancer and chemo make terrible weight loss programs.

Yes, you can, and probably will, lose weight but it’s not directly related to the cancer or the treatment. In fact, you take a steroid pill prior to, and a couple of days following, each chemo treatment. Steroids make you hungry.

No let me restate that – they make you ravenous. The problem is food tastes like crap. Well, that’s not entirely true either – it does not taste like crap, it tastes like wall paper paste, or for all of you moms out there, it tastes like rice cereal.

Most everything tastes the same. Bread tastes the same as beef, tastes the same as turkey, tastes the same as broccoli, tastes the same as apples, tastes the same as wine, tastes the same as… well you get the idea.

So you may lose weight, but only because you can’t find anything that tastes good enough to chow down on. Don’t get me wrong. I kept trying; I had the feed bag on all the time. I’d make a sandwich – bad mistake due to the bread (explained below) – eat a quarter of it and throw the rest away. But remember, I was ravenous! I’d hit the fridge or the cupboard and try something else, only to eat part of that and again throw the rest away.

Over my four months of chemo I think I lost about ten or twelve pounds. About ten days after chemo ended, I was right back where I started… so much for self-control and keeping the weight off.

Your taste buds do have a schedule though, and the effects of chemo are cumulative, so you won’t really notice a big difference in how things taste after your first or even second treatment.

I wasn’t sure if it was because the cells are regenerating or because the drug is now more diluted in your system. Luckily I recently had one of my follow-up appointments and it turns out that it’s a combination. The cells in your mouth regenerate very quickly and thus, tastes change rapidly. In addition to that the chemo drugs make you taste differently. Do with that what you will and make your own conclusion.

I’ve spoken with other folks who are on, or have been on chemo and they said that they had a “metal” taste in their mouth. I never did have that metal taste 24/7. I only had the odd taste when I ate or drank certain things.

It happens gradually, like this: Treatment day (day 1) all is good; days 2–3 things begin to get tasteless; days 4–9 even worse; days 10–13 things start to taste better. Day 14 – oh no! You’re back to day 1!

Foods:

The worst? All starches (except corn – research it… it’s not a vegetable but a starch) – bread, chips, pasta, crackers, and mayonnaise added to anything intensifies the yuck factor. Cheese gets a watery/moist feel in your mouth. Ketchup doesn’t help either.

Here’s what worked best for me:

  • Add bacon to anything… a beef patty with bacon on it actually ended up tasting like beef – really couldn’t taste the bacon.
  • Mustard on carrots. Mustard on beef didn’t do a thing.
  • Green giant canned corned – tasted just like corn! (Caution – adding butter and salt takes it back to yuck).
  • Mocha Almond Fudge ice cream tasted just as it should. (I managed to consume a half a gallon a week.)
  • See’s Candy – milk chocolate covered almonds, peanuts or walnuts – I went through about one pound a week – yummy! This is where the self-control went out the window. I kept eating the chocolates when everything else went back to tasting normal.
  • Tao Tao Pork Fried Rice with sweet & sour sauce – maybe it’s the soy sauce they put in it, but it was the only starch that tasted good.
  • Life cereal with milk – must be the high sugar content or something.
  • Watermelon, grapes and cantaloupe.
  • Some chicken, depending on how I cooked it.
  • Best lunch meal a day or two prior to chemo – BJ’s ½ classic baked potato with a salad wedge and 1000 island dressing ($6.95). Ranch dressing and Italian dressing really didn’t work.

Drinks:

Even water tasted the same as food, as did wine and beer, so give that idea up. Although on the wine front, the expensive stuff tasted really bad and the cheap (like two buck chuck) was palatable.

Here are/were my favorites

  • Safeway brand apple juice, Welch’s grape and Ocean Spray cranberry-grape juice.
  • Bubbly water with citrus, such as Calistoga with lemon or lime.
  • Nestee Iced Tea with artificial lemon flavor – this was actually a hit or miss thing.
  • Certain Gatorades – mine was orange – the others did nothing for me.
  • A&W Rootbeer (Mug and Barqs not so much).

That was about it. Please note that I have brand names in here. To the “normal” palate I think they all taste the same but to the chemo palate – there is a difference. You’ll have to try each and see what works best for you.

As you can see your menu choices are somewhat limited but you’ll get used to it, find the things that taste good and eat those as often as you want. Absolutely nothing made me nauseous.

Here’s how odd the taste buds get. I saw on sale a 4-pack of pudding cups and figured what the heck, lets give it a go. I didn’t even check the flavor, and once out of the box, the individual serving containers weren’t labeled.

I took one to work and ate it as a morning snack. I decided that it was caramel flavor, and it tasted really good. The next day I took another one, and this time I corrected myself. It was butterscotch not caramel. It still tasted good, though, so no problem there. The third day I had to correct myself yet again. No, it was banana flavor.

In order to keep my sanity I had to find out what the manufacturer said the flavor actually was. Off to the grocery store I went. I found the product, and it was banana and they don’t make caramel or butterscotch. That may give you some idea of how your taste buds change just over 72 hours and as you get further away from your chemo treatment

So enjoy a meal of Mocha Almond Fudge, Green Giant Niblets corn, a baked potato with a nice glass of “two buck chuck” followed by a pound of See’s milk chocolate covered nuts for dessert!

Hair – hmmm, where’d it go?

August 26, 2009

I was so looking forward to writing this post but have feared that it would not turn out as good as I’d hoped.  Let’s see shall we?

Another brief but well deserved warning.  If you thought the last post had TMI just wait!

Let me start by saying that the docs warned me I’d be losing my hair.  Armed with that information, I decided I wasn’t going to watch it all fall out, so I shaved from top to bottom, stem to stern and got rid of it all.  And let me tell you – I absolutely loved being bald.  I’m not vain nor a girlie girl.  It would have been more difficult for me to learn to tie a scarf or wear a wig than to walk around with my, if I do say so myself, perfectly shaped bald head.

So, now, off we go.

The question is do you lose *all* of your hair, everywhere?  Technically, the answer is no you don’t.  But visually, yes you do. And it is *everywhere*.

Here’s how it works.  Your hair does not technically fall out.  What happens, due to chemo, is that your hair, all over your body, goes away.  Your hair continues to grow and comes up through the follicles but once it breaks the surface of the skin, it is so fine and weak that it can’t stand up; it bends, and breaks off.  Even when I was perfectly bald, I still had hair loss – tiny hairs, like dandruff flakes, were constantly sloughing off.  At work, I have a high backed, black chair I often slouch down in, and when I’d stand up, there’d be little tiny hairs left behind.  There was also one spot on the crown of my head that looked completely bald, but when you felt it you could feel stubble… weird.

Okay, since the purpose of my blog is to share all this new found knowledge I’ve acquired, let’s talk about how much hair you actually have on your body and the reason why it’s there.  Get ready because I will address all body parts, even the ones that might make less intrepid bloggers squeamish!

Let’s go top to bottom.

Head: It’s there to keep you warm and make you look styling.  No big deal losing this portion of hair except when you have a bald head rain is really wet (yea I know, no shit, Sherlock), and when rain hits your head without hair you not only feel it but you hear it… ask any bald person. There is absolutely nothing to stop the rain from running down your face or more importantly your neck.  Remember I was bald through the winter and spring months, and there was plenty of rain.  A collared shirt is your worst enemy as it not only channels the rain down your back but also collects the wet.  Tee shirts work best – they don’t funnel or absorb nearly as much.

You’ll be told that when your head hair starts to grow back, no matter your age, it will come back white and curly.  Liars! At least to date in my case.  Mine is coming back a brindle color – keeping in mind that I’m sure I had a lot of gray I didn’t even know about since I’d been coloring forever – but the curly hasn’t happened yet.  I’m still hoping though. I’ve always wanted curly hair. It’s too short to tell yet.

Eyebrows: As far as I can tell these have absolutely no purpose whatsoever. Maybe had I lost them completely rain or sweat would have gotten into my eyes, but who knows? These seem to be the slowest growing hair on your body.  I made it all the way through chemo and still had some left. On the upside I didn’t have to have a wax for six months.  Interestingly, eyebrow hair is the first to grow back.

Eyelashes:  I never lost all of mine but I did lose enough to make a difference.  Eyelashes keep a bunch of crap out of your eyes.  You don’t realize how protective they are.  Not having them your eyes water A LOT.  Honest to goodness, buy stock in Kleenex as you will go through a large box a week.  People will think that you’re crying all the time because you will constantly be wiping your eyes.  And, if you can believe this, the partial solution to the problem is to buy a product called “Tears.” Putting Tears in your eyes several times a day keeps them wet and clean, and then they don’t water as much – in theory. (It never worked for me). Honestly, I never found anything that worked for me except making sure I had Kleenex in my hand, pocket, purse, etc., at all times.  The condition disappears about fourteen days after your final chemo treatment.

Nose: Nose hair filters the dirt coming in and the sinus-related fluids going out.  Take the hairs away, and there’s no stopping the stuff that wants to come out. A runny nose gets crazy with only Kleenex to stop it. And lets be clear – it runs like a faucet, you have no control, sniffing doesn’t work.  Keep a Kleenex handy because all of the sudden you will look like a two-year-old, nose running, no warning.  Luckily it’s a very clear, thin discharge, so, if desperate, your sleeve will work with no noticeable evidence.  You don’t really notice when this hair starts to come back except that your nose stops running.

Arm Pits:  Yes it goes, and yee haw to that!  It’s gone, gone, gone and absolutely no shaving for months and months.  I think I was post-chemo about six weeks before I actually wanted to shave and that was just because I could feel nubs there.  It was so light and fine it really couldn’t be seen.  And the old addage, “if you shave it, it will grow back thicker” isn’t true.  It still grew back fine and light.  I’m now four months post-chemo and where I used to shave every day I can now go three or four days.  I do it every other day just because I think I should.

Bikini/Pubic Area:  Yep, you’re going to look like a pre-pubescent girl.  Now, I’m not a thin flat bellied woman.  I blame it on child birth rather than on me never exercising, but had I been one of those women who could wear the low ride jeans, I would have been golden.  Also, if you want to jump into a bikini you won’t have to think about it for one second.  Again, no waxing and shaving for months after treatment finishes.  When it returns, the hair comes back in the original color.  I was glad to see that. Just as I remembered, I’m more auburn than brown and I wasn’t just fooling myself with my hair dye.  One strange thing, so far, this hair hasn’t come in curly it’s straight, which is a little disconcerting to me. Still, I’m going with it… things could change.

The butt and the nether regions:  Yes, we all have hair down there and it absorbs quite a bit of natural secretions.  I was unaware of how much a butt crack can sweat but it does.  Don’t worry, it’s not so bad that you have to wear Depends or pads but you will or can get a light case of diaper rash when it’s hot outdoors – who knew I’d be using baby powder on myself at 48 years old? Also, if you don’t already shave the area, you’ll notice that less vaginal hair means less absorption of normal secretions. Your body is working overtime to keep everything lubricated.  It’s used to being moist in these areas and the drugs are drying everything – eyes, skin, nose, the nether lands – so it produces more water to try and get the balance correct.

On the upside, if you’re a Brazilian waxer you won’t need a treatment for six months – say bye to the “ouch that hurts like hell!”

The legs:  This was interesting for me.  I, for years, needed to shave below the knee daily and above the knee about once a month.  I shaved my entire leg – which being 34” long is no mean feat – for the final time about two weeks after chemo began, but my legs always felt like there was still stubble there so during chemo I kept shaving about once a month.  Now, four months after chemo, if I shaved only when I could actually see stubble, I’d shave probably once a week.  I do run a razor over it once a day even though it’s probably not needed, and I definitely enjoy the fact that I can go a day or two without shaving.  How cool is that?  I can actually put off shaving by a day if I put on a good layer of aloe lotion each morning when I’m straight out of the shower.

The feet:  Luckily I did not and do not have hair on the bottom, or top, of my feet so I can’t speak to that personally but if you do, I’m sure that the hair will go away and come back eventually.

So now you know the truth – ALL of it – about chemo and hair loss.  Enjoy being hairless (which now you know, you aren’t really) while you can!

Just after the initial head shaving.

This picture was taken just after we had our heads shaved.

Chemo Side Effects – at least for me

August 20, 2009

Okay, here’s your warning – this may be TMI for you so read at your own risk!

I consider myself lucky.  I really did not have too many side effects.  And those that I had were quite minor. Some even eventually turned out to be beneficial.

When people hear the word chemo they immediately think of nausea and vomiting.  You may now officially do away with that correlation. The medical community has figured this one out.  The three “big pills” (and they were quite large) that I took the day of, and the two days following each treatment, worked wonders.  In fact, it was a steroid that made me absolutely famished.  They also gave me two different “back-up” drugs and told me if I felt the least bit queasy to take them. I never had a problem at all with nausea, and keep in mind that I am unable to read a map in a moving car without needing to stick my head out the window into the wind like Fido.

Then there is the mouth.  Apparently certain chemo drugs can muck up your mouth so you need to keep it really clean, but you have to be careful.  Chemo causes you to slough off cells all over your body, including in the mouth, with new cells regenerating all the time.  I thought that this would be a piece of cake – rinse with my usual mouthwash more times per day.  Nope, I was wrong.  The alcohol in the mouthwash is too strong and can damage the new cells.  But fear not! The powers that be have a solution.

Mix one quart of water, two tablespoons of baking soda and one tablespoon of salt, and rinse two to three times a day.  I’m not a fan of swallowing salt water and I’m even less of a fan of baking soda unless it is an ingredient in some decedent desert.  This was by far one of the worst parts of the entire chemo experience for me.  I would just gag each time but fought my way through it and I never had any problems in the mouth, so it did work.  And as for brushing, that’s limited to twice a day with a soft bristled brush.  You can also kiss your dentist goodbye for at least six months.  There is too much of risk of infection so that is a no-no.  In the event of a dental emergency, they start you on antibiotics so you can get the work done.

Ever wanted to shed like a snake?  Here’s your chance.  To describe it as dry skin is such an understatement you wouldn’t believe it! Okay, admit it, you’ve done this as a kid… taken white Elmer’s glue, spread it thinly all over the palm of your hand, let it dry and then tried to peel it off, all in one piece.  If you really didn’t do this, give it a go for a true visual.  The bottom of your feet will do the same thing without wasting the glue.  I was warned that the word “lizard” would be a good word to describe what may happen, and it was suggested to slather up with loads of lotion.  Silly me, at this point I didn’t realize that what I thought were suggestions were really directives.  Thus, imagine my surprise one day when taking off my sock I noticed my heels peeling.  It does not hurt, it is not uncomfortable, but it is a bit weird to be able to pull off a two-square inch of really dry skin.  Three words: lotion, lotion, lotion!

The nails go too.  Toe and finger both, but in different ways and in quite unexpected patterns, not necessarily all of them.  Fear not, you don’t wake up one day surrounded by twenty digit nails, nor will you be walking down the street, crying “hey, somebody grab that thing we may need it later.”  I’m not sure what it was with me and socks (except I do have over a 100 pair and wear them all the time) but one day I was taking one off and it snagged a nail.  I gently finished taking off the sock to check out the nail and low and behold, it came off in my fingers (again, no pain). This actually worked out really well for me as it saved me a trip to the podiatrist to take care of an ingrown nail on that toe! Still, there I was looking at my now bald toe.  However, it wasn’t as bald as I thought.  Remember I mentioned, as in the mouth, your cells are regenerating all the time.  Here’s what happens.  As the new cells regenerate, the old cells get pushed away. So there was actually a nail there, but very fine, soft and thin, similar to a baby’s.

Going forward, I paid more attention to the toe nails. I kept them trimmed very short.  When one would get loose, I would use a Band-Aid to hold it in place and keep it from getting snagged and then ripped off. (I’m sure it would not have hurt, but I was too chicken to take the chance).  Usually a couple of days later when I took off the Band-Aid, the nail painlessly came with it.

I employed this technique with the fingernails as well.  At one point though, I was overwhelmed with the way the toes were looking and went to see the podiatrist.  He did a debridement on all ten toes.  I know that sounds daunting but what it means is that he trimmed, shaped and polished them – a sort of super pedicure.  Believe it or not, losing the nails turned out to be a big plus as they are all growing back new and perfect.  I have a follow-up super pedicure scheduled so that the podiatrist can keep “training” the nails to grow back perfectly.  I suggest, if you experience this side effect, you schedule a podiatry appointment for about two weeks after your last chemo treatment.  No sooner, due to the chance of infection, and any good podiatrist wouldn’t treat you while you’re on chemo.

I never knew that there could be such a fine line between constipation and diarrhea but there is.  You can experience one or the other, or both.  I had both, but it was my own fault.  I’m lactose intolerant and I’ve known that for years but sometimes I just can’t resist a good bowl of cereal or ice cream. I pay the price with tummy problems and diarrhea.  It’s okay though because Imodium is a quick fix.  However, chemo tends to constipate you and that combined with a dose of Imodium can make things, shall we say, a bit challenging.

When I experienced my first bout of constipation I vaguely recalled the side effect having been mentioned somewhere in the tomes of information I was provided, so off I went in search of an answer.  It was there, of course, in plain English, although it didn’t say, “in case you experience constipation take Colase or some similar product,” which is what I thought I remembered. (Colase, by the way, is a stool softener not a laxative.)  What it actually said was “take one pill daily” – oops.  Again, this falls into the category of not a suggestion but a directive.  By now you’ve probably realized that I’m the type of person that tries to build things first then reads the instructions when nothing works.  My suggestion is to actually read the material they give you and follow their directions as it’s not their first barbeque, but it’s probably yours.

One other mention on lactose intolerance that I learned and this has to do with the surgery part.  If you are lactose intolerant mention it to your surgeon.  As it urns out, those dissolving sutures don’t dissolve as quickly in lactose intolerant people.  I found that out when my incision site gapped.  The suture didn’t do its job because it wasn’t dissolving; it was stretching, thus opening the wound and not holding it closed.  It wasn’t a big problem; they tightened it up, threw some steri-strips on it, and I was good to go.

Next up… “Hey, where’d my hair go?”

Just making a point – get ready for touchy feely

August 12, 2009

There’s a point I want to make because I think it’s important. In theory, once you have surgery, the cancer is gone. That is what you should believe. I certainly did.

The chemo and radiation are “preventative measures” in that they insure that the cancer does not recur in the next 5 (and hopefully more) years.  Studies show the power of positive thinking and optimism; the body-mind connection is well-documented. I believed absolutely that, after surgery, I was “clean”… I don’t want to use the word healthy because I was healthy through the entire process.  I was never sick in the sense of how people think of being sick.  I never felt physically bad enough that I couldn’t make it through the day, make it to work or the like.

At least in my case I never felt any different than before I was diagnosed.  In fact, looking in the mirror each morning and seeing my bald head was my only reminder that there was an issue and that I was going through something special.

In a way, it was a little like being pregnant (which was for me a once-in-a-lifetime experience). Each phase of pregnancy was challenging, awesome and inspiring. It may sound funny, but the same was true of breast cancer.

At the end of pregnancy, of course, you get a baby.  So what do you get, or at least I got, during cancer treatment and once it was done:

  • I was bald. I stood out in a crowd. I was different and proud, and being proud was effortless.  It was awesome and I do miss being bald.
  • Life became simpler.  No shampoo or shaving involved, literally 5 minute (or less) showers.  This must be how guys get to feel every day – lucky them.
  • I ate a pound of See’s chocolates AND a half gallon of ice cream each week without guilt – yes, I probably could have eaten an entire watermelon instead but heck – it’s not gonna affect your weight – so given the choice what would you do?
  • I got clarity. I knew there were people going through tougher times than me.
  • The biggest and most rewarding thing I got was the knowledge that the friends I’ve picked over lo these many years were very good choices.  They all stuck by me, nobody fled, nobody was afraid to ask me a question, nobody avoided me because of the diagnosis, and none of them cared or seemed to notice that I was bald – or criticized me for making the choice to “do bald.”  And even better, friends from years ago, once they found out, came back into my life… to stay, I hope!

So in my very humble opinion it was, and still is, all a very positive experience.  I’m not sure I would sign up for it given the choice but I certainly don’t regret, nor am angry, that I had to go through it.

Next up TMI (to much information) – I’m going to be discussing chemo side effects.

Chemo week almost over!

August 5, 2009

Saturday (T + 2) Take the “big” pill

This day, especially after your first treatment, you will sleep quite a bit.  All of the tension of the new experience kind of wears you out.  In addition the Neulasta is kicking in and, consequently, so are the “flu” symptoms.  Face it, you’re just tired, give in to it and rest.

Special note… I’m a single mom.  I scheduled my chemo for the Thursday before my son went to his dad’s for the weekend.  Come Saturday I had no responsibilities and could just rest.  For those of you who have husbands and kids I hope they understand that you will be tired.  If it is just a husband I’m sure that he’s worried… but tell him to take the day and go spend it with the boys watching whatever game is on, or maybe playing good round of golf.  It will be good for both of you.  He won’t be hovering and you can just relax. Unless you are a complete princess and want him to wait on you hand and foot… then this is the perfect excuse to ask for that but I personally wouldn’t recommend it.

If you have a husband and kids just make sure that you explain to the children that mommy is okay just very tired.  Relate it to the flu and/or when THEY are not feeling well.  Ask your husband, significant other, or partner to take the kid(s) to the movies, miniature golfing, bowling etc.  Bottom line… get them out of the house and relax.  The more rest you get on day 2 and 3 the quicker you’ll bounce back on days 4, 5 etc.

Sunday (T + 3) – Just another day, no drugs to take

In the morning it’s probably the most tired and achy you’ll feel due to the Neulasta shot (this thing will kick your butt much more than the chemo).  Again, just try and rest.  But by mid-afternoon you will probably feel well enough to socialize and if you want to go out for a glass of wine or maybe pizza with the family in the early evening, go for it.  You might only be good for about 60 – 90 minutes, but it’s well worth it.

Here’s how to make the most of the feel good time…

  1. turn on the shower,
  2. tell whoever is driving to fire up the car,
  3. take a 2 minute shower… now don’t go all wild on me here… remember there is no hair to wash or shave off so… get wet, soap up, rinse off and you’re done (eventually you will miss this simple regimen),
  4. 10 seconds to put on the foundation makeup, blush and mascara if you still have eye lashes, 3 seconds for the deodorant and spritz of perfume,
  5. 20 seconds to throw on the clothes (I’m assuming you have those laid out in advance and are not searching for “something to wear”),
  6. Done, out the door and into the car!

Now you have a good 53 – 83 minutes of fun time… if you really want to make the most of it – call the pizza place before you hit the shower and place your order. Then just walk on in, grab your beverage, grab your pizza, sit, eat and relax.

Caution… this will wear you out so when you get home you will go immediately to bed and sleep for many hours.

Monday (T + 4)

You should be starting to feel much better.  The “flu” symptoms are dissipating.  You’ll make it to work on time and be able to hang in there for the day and even get home, cook dinner, maybe do a load of laundry but you’ll definitely want to hit the sack by about 8 p.m.  (I’m basing this on being up at 6 a.m., getting a child to school and being at work by 7:30 a.m.).  If your schedule is more flexible you should be golden!

Tuesday through all of the days until your next chemo week begins.

Each day just gets better and better.  By this time you kind of forget how crappy you felt and it seems like forever until you go for your next pre-chemo appointments.  As you can see for chemo week you’re booked each day.  Now you have an entire week where you don’t have to be anywhere, see anybody or get poked with anything!

And here’s an interesting thing I didn’t expect. I’m 4 months post-chemo and 3 months post-radiation and am still having trouble adjusting to not having to go to the medical center daily or weekly for something.

The center became like a safety net and then they cut me loose.  It’s oddly jarring when you find the medical professionals are no longer there, and it’s just you.  It’s difficult to wrap your mind around no longer being “sick” or “invaded” even though the cancer was gone long ago.

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I’m still waiting for the new shirts on the shopping site and hoping to have those available within the next week. But if you haven’t visited yet go check it out at http://www.iiwii2009.com

And if you want some fun on Fridays come play “caption this” at http://zebrasounds.net – even if you don’t participate it’s fun to read the captions!


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